I begin by saying that no one is born strong or amazing, until being strong is the only option you have.
Living with a bipolar is a bit like Standing on a Surfboard and trying to keep your balance each time the wave hits your board.
Try surfing and standing on the surf board for awhile to know how difficult it is to stay balanced when the wave hits your board. First you scramble your way up, to get onto the board, which already is a massive feat, then you try to get one leg up and then, two legs up, stand on it and lastly dance with the waves.
For over five years now, I have learnt to dance with the waves, which sometimes I don’t foresee coming. I try to keep my balance in the whirlwind of things, though I fall many times over. Yet, I rub off the pain and I pick up the courage to stand up again. And that has been on repeat mode, year after year.
Thankfully, we are a team of four people. As when she crashes, the whole house crumbles with her, and each one would be have to play their role accordingly.
In Malaysia, mental health is very much a taboo subject, not spoken of or very little. Often hidden and mistaken by some “Buatan Orang Disease”. The fact is, Bipolar is a problem of chemical balance in the brain – where the patient is either feeling Low and Depressed, or Happy and Manic on the other end of the spectrum. There are two types of Bipolar, Type 1, and Type 2 . So, who usually suffers from Bipolar? Highly creative people and highly intelligent people where the brain waves move at double, triple the average norm. Neurochemistry is an interesting chapter, but basically bipolar is a health condition that needs to be treated by a certified Psychiatrist, a Psychologist and a Counsellor at a proper hospital. It takes an entire team to diagnose a patient, as it is a life threatening sickness, that sometimes lead to violence, depending on the level of severity.
Unfortunately in Malaysia, only some public hospitals are equipped to take in Psychiatric patients. The wards are jail-like, locked, and tightly guarded. The most sombre atmosphere one can ever imagine, where children are not allowed and no companion is allowed to stay in after its very brief visiting hours. Visitors are limited, and will be chased out when exceeded.
No matter how much money you have in your bank account – you will still have to go to a public hospital to get treated for bipolar. I used to sleep by the roadside of a public hospital, with my sweater on, while we wait for the Specialist to arrive. They usually take three hours to show up after the first call, and only one parent is allowed to accompany the patient. My default location was the roadside. That beam you see in the picture would be my headrest at midnight for me to take a little slumber, while I wait for my phone to ring if there were any updates from within. The seats at the waiting area is full, the floor is also packed with “marhaen” camping, regardless of time and day. Humbling experience that was part of my journey as a Bipolar Caretaker.
The journey is meandering, undulating, and the anecdotes are plenty, some of which will remain enclosed in our secret garden. The aim is not to divulge all incidents, as not all episodes are pretty. The aim is to educate and prepare those who might be in a similar situation, but are too afraid to get out of the closet or are still in denial. It could cost you a life, or several lives. When untreated, they hurt themselves, and/or others.
Many are afraid, some are even ashamed or simply choose to remain blissfully oblivious. Having bipolar, which usually begins with depression can be treated. Although, there are a lot of trial and errors in the medications prescribed – there is still light at the end of the tunnel. The episodes might be frightening as the body adjusts to psychiatric medications, often not compatible initially. The side effects are nasty, with patients packing on a minimum of 30kgs. But these are the consequences of such pills.
THE ROLE OF THE CARETAKER
As caretaker, you will need to equip yourself with tonnes of patience and nerves of steel. Not just the average tonne, but many truckloads, busloads, boatloads of patience. Your mental strength has got to be extraordinarily robust. There is not much room to sob, cry or indulge in sissy sadness. Things just evolve very quickly, sometimes without much time to compute. You’ve got to always be three steps ahead of the game.
In the early days, I once rode on 5 ambulances in less than 24 hours covering 3 hospitals in the Klang Valley. Since then, I know what it’s like to want to reach the hospital as fast as possible. I know what it’s like to see the horizon of death not too far away. I know what it is like to live a nightmare.
A bipolar caretaker’s lens of life is bent in many ways. They are forced to expect the unexpected and drop the bar of expectations to the ground. They build their inner strength through bouts of panic, hopelessness and terror. And then they freeze it all inside, to conceal it from the outside world.
For those who are watching from a distance, they think we are strong.